ER “Frequent Flyer”

So, this is our life: a few weeks out of the hospital… a few days in… rinse… repeat. Maddie had another high fever again and we took her to the Emergency Room at midnight on Friday. She was admitted for another 48 hour observation at 5AM on Saturday morning.

The funny thing is we weren’t phased by it. I mean, we were terribly worried that she was ill but we weren’t surprised that we were headed to the ER again. The reality is that anytime she gets a high fever we’re going to have to take her to the hospital. Period. But in all honesty, we don’t feel burdened by it. It’s just life with Maddie. And that’s OK.

Thank heavens my mom was visiting this week. She has been incredible to have around– to care for Warren as we’ve gone back and forth from the hospital. The funny thing is that Colin’s mom was here the last time Maddie was hospitalized. She was a tremendous help to us, too, but we have to admit that if Madeline continues to get sick whenever family comes to visit us then we’d rather not have visitors, thank you very much!

As of this evening, Maddie’s fever is gone. But she has a pneumonia in her lung– most likely a result of her surgery in March– and she needs to be clear before she can come home. As always, she’s in good spirits and is charming all the nurses, some of whom remember her from our last visit. The charge nurse commented on how cute she was, especially in her pink Katie bow. She  said how fun it was to see her again, but she didn’t want Maddie to become a “frequent flyer” there. Umm, too late.

Maybe there’s a punch card we can carry with us. Membership usually has it’s privileges, no?

5 thoughts on “ER “Frequent Flyer””

  1. Oh, I am so sorry. Your strength and outlook and the humor you find in it all to lighten things up really is amazing. I love the way you look at it all- it’s just life with Maddie. It sounds like you are coming to grips with accepting how things are, and I’m sure it will be a process. Just as soon as I feel like I’ve accepted Evan’ condition and the possibility of more complications and his dependency on meds, I have another day of breakdowns. It’s a journey, that’s for sure. Thank goodness for family and prayer in this journey. We will pray for Maddy to fight this pneumonia speedily!! …and we’ll also be praying for your continued optimism and strength. Maddy is one lucky little gal to have you guys.

  2. Maybe you can get free jello. Isn’t that the ultimate hospital food?

    Also Katie should give you some business cards and then a commission for spreading the word about her bows using such a beautiful model.

  3. I love your optimism.

    What color gown does she wear? If she’s going to be there so often, I must make a custom bow to match!

  4. I’m glad you have accepted how ‘her life’ will be. I can’t imagine. It still has to be hard. On a side note, I have a friend up here that makes bows kidna like those and sells them. I don’t have any girls though. lol

  5. I’m so sorry to hear she was sick again – you guys are amazing to handle it with so much patience and a great attitude. She is one lucky little girl to have you two as parents! I hope you don’t have to return to the ER again any time soon…

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