The surgeon just came up to tell us that Maddie’s heart cath went well. They were able to open up the fenestration and place a stent to prevent it from closing again. Only one clot was spotted in the Fontan circuit and it did not dislodge during the procedure.
This is very good news.
The pressure should now begin to decrease and the drainage should slow. But all this has set her back considerably. We are in this for the long haul. It will probably be another 3-4 weeks before she is fully recovered.
She hasn’t returned to the ICU yet. She’s getting a few more things done: her mediastinal drainage (the tube you see in the middle of her chest) slowed enough to pull it out, and we requested that they place a PICC line (peripherally inserted central catheter) in since she’s going to be here for so long and she constantly “drops” IVs because of her small veins. (That way they don’t have to continually poke her to start a new IV, a very traumatic process for little kids.)
Thank you. Thank you all so much for your heartfelt prayers, love, and concern. We are so grateful to know that you are supporting us.
More updates to come…