It’s been one full week since Maddie’s surgery.
So much has happened since last Thursday and at the same time we’ve barely inched along. The past two days since her heart catheterization and reopening of the fenestration have been good because her heart is beating so much better. But they’ve also been bad because she’s becoming unreasonable about taking medications.
Once she came back to the ICU from the cath lab there was a noticeable change . You could tell immediately that she was improving. She’s been eating and drinking ever since, but she’s low in potassium because of all the pre-procedure fasting and days of barely eating from nausea while she was tachycardic. We’ve spent the last 48 hours trying to get her to drink Pedialyte, Vitamin Water, eat bananas, and anything else we could think of to increase her K levels.
She’s still in the ICU. There are two medications she’s receiving through IV that need to be taken orally before they can move her to the regular floor. She struggles taking anything that might remotely taste bad so it has been a full-time job trying to cajole her into cooperating.
But all that effort to eat seemed lost when we had to force her to take the two required meds by mouth this afternoon. She got so worked up about it that she let her gag reflex take over and she puked the entire contents of her stomach. The picture above is post puke fest. She has a no-water-necessary shampoo cap on her head to get the chunks out as best as possible. It’s just as fun as it sounds.
We’re all fed up. We’re all exhausted. We all want to go home.
Tomorrow is another day. Less drainage, higher potassium, better oral medication consumption. These are all great goals for a Friday in the ICU.
As ever, we are grateful for the many friends and family who continue to offer up words of encouragement, prayers, and hours of tireless service. Slow progress or not, we are truly blessed.