Fontan Recovery: Day 18

So many things to report but I just can’t seem to find the time or the energy. I will say that the more I watch Maddie handle the trial of constantly being woken up for vital checks and prodding, the more I see her suffer through peripheral blood draws while asking for precise descriptions on their procedures to get them straight in her mind, the more I see her eat, drink, get up, and use the bathroom with those painful chest tubes, the more I admire this girl. Not only does she have spirit and fire to keep her going but she has strength and determination. Maddie does not give up.

And that’s why when the nurse asked her if she wanted to go for a walk down the hall this afternoon she not only walked down the corridor but went for the complete loop around the floor. I shouldn’t have been surprised but I was. And so proud, too. It was like watching her take her first serious stroll on her own as a baby, finally independent and ready to explore.

Over dinner tonight, I asked her what was her favorite part of the day. She said it was walking. I couldn’t agree more.

Pleural effusions, you can’t keep our Maddie Girl down! See for yourself…

(Please excuse the bare bum peeking out!)

15 thoughts on “Fontan Recovery: Day 18”

  1. This video is pure joy! It brought me such immense happiness and peace to see her up and about! But it was those piercing eyes at the end, being able to see into her soul and seeing the strength and determination inside, that got me most!

    Thanks for posting! You and your family continue to be in all of our prayers!

    Warrior on!


  2. Maddie is certainly a fighter !! I am so on awe of her strength and determination ! Prayers continued for all of you and thank you for sharing her miraculous recovery with us !

  3. Bless her little soul! This was the best news Hari got for his birthday today????. We’re so tremendously happy….

    loads of love…

  4. What a wonderful sight to see!! This brought tears to mine eyes (which is not new through this whole ordeal!!).

    Love, love, love!!!

  5. What a trooper!! I can’t even imagine how uncomfortable and difficult this has been for her. She’s an inspiration… you all are!! xoxo

  6. We are so happy to see Maddie walking in the video. That was wonderful Maddie again! She is strong and we believe that she will recover fast and return home with lots of smiles.

  7. I loved this video so much that I watched it a few times :-)………thank you for documenting this journey amongst your crazy, chaotic life-it makes us feel like we are getting to peek in every once in a while on Maddie. She continues to live up to her reputation-a strong fighter who won’t back down to any challenge thrown her way :-). Tell her we love her! Love you too, Jeannie. Hugs.

  8. This video totally captured my heart! No matter what goes wrong today, I will have something to celebrate 🙂 Thank you for sharing!

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