Zero Tubes

Tube free!

Maddie is once again tube free. Can I get an amen?!?!

It’s been 7 weeks since the Fontan surgery and Maddie is running around the neighborhood like a champ. Her last chest drainage tube came out on Friday. It was, as always, traumatic for her as she fought to leave it in indefinitely rather than remove the bandaging and suture, but she faced her fears and let the doctor remove it all.

Today we saw her cardiologist. Maddie’s chest x-ray, oxygen saturation, and INR levels (how fast her blood clots while on Warfarin) look fantastic. In a nut shell, she is doing amazingly well.

And you can see it in everything she does. It’s evident in her face, her eyes, the way she moves her body. She doesn’t get winded when she walks up the stairs anymore. She rides around on her tricycle longer. She can run down the street with her friends without needing too many breaks. Her rosey cheeks and red lips show us that she’s actually getting blood flow to those areas now.

There is no question that her quality of life has improved. What a tremendous blessing that we live in a time where she can receive this kind of extensive treatment and not only survive but actually feel better.

It took a long time to get here but we are only going upwards now. She is astounding to me. Her bravery and determination are absolutely humbling to witness. I am so grateful for this strong, tough girl.

10 thoughts on “Zero Tubes”

  1. Zero Tubes – now that is a huge reason to celebrate 🙂 !!

    I am so thrilled for you guys. These last 7 weeks have been quite the journey for your family. I am glad you can now move on to the next chapter in your lives. The bravery and determination and faith shown by *ALL* of you has been awe-inspiring. Thank you for letting us be a part of it!


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